IUD for treatment of recurrence

Hi friends. Complicated feelings posting here of course, but glad there is a community I can come to.

I was diagnosed with Stage 1A grade 1-2 endometriod adenocarcinoma of the ovary in 2021. After removing a 16cm tumor, and my right ovary and right fallopian tube, I had no evidence of other malignancy and started observation — no other treatment. I just hit 3 years NED in October with a 1-5% chance of recurrence.

My husband and I have been trying to get pregnant for over a year and decided to loop in a fertility specialist. In December, I underwent a procedure to remove some uterine polyps that were found. In pathology, these unfortunately came back as endometrial hyperplasia with atypia, and spots of FIGO 1 endometriod adenocarcinoma. Thus, I am starting my journey over again - UGH!

I am currently suppressing my cancer with a mirena IUD & doing a cycle of IVF to freeze my eggs. My oncologist said if I had clear endometrial biopsies for 12 months, we could try removing the IUD and implanting an embryo. Any sign of no clearing and/or progression would mean immediate hysterectomy.

I was very confident about this decision but now I’m just feeling so lost. The stats aren’t making me feel great - hyperplasia is one thing but adenocarcinoma is another. And then there’s the fact that I had cancer back in 2021 and was pretty much told by my oncologist “don’t rush to have kids - it won’t come back” and here I am… Has anyone with endometrial hyperplasia WITH ATYPIA AND FIGO grade 1 endometriod adenocarcinoma had luck with suppression therapy?

I want a child so bad, and it is so devestating to me that this was found while I was actively trying to increase my chances of having a baby. But I also love my life, and my husband, and I feel a bit silly risking anything. It doesn’t help that half the people who love me are supporting me with fertility preservation, while the other half want me to get a hysterectomy especially given my history. I just don’t know what to do!

Should I get a second opinion - is that worth it? Could use any advice at the moment… Sending you all love and strength; you are not alone xoxo